I’m about to listen and I’m not sure I’ve ever been so impatient to consume information as I am this for information! I was just diagnosed with hEDS (after the unfortunately all too common many years of misdiagnoses and ineffective treatments, etc.) and although from your introduction I can understand Carta’s diagnosis for which specific type of the Ehlers Danlos Syndromes was adjusted after recording, I already anticipate this might be incredibly representative in a way I’ve never thought possible since becoming disabled almost 7 years ago.
Absolutely a joy to share Carta’s words with y’all! I am currently diagnosed with fibromyalgia and POTS, and I still relate so much to what Carta has to share around her experience. I’d be surprised if you didn’t find something that resonates for you!
If you’re interested, there’s an earlier episode with rae who lives with vEDS and talks about it as well. 🖤 And thank you so much for the comment!! My heart is so full knowing someone else is as excited as I am, haha.
I enjoyed part one very much, I look forward to part two. Carta’s mention that there is a prevalence of autism and hypermobility in the trans sex worker community is something I hadn’t heard before. I’m curious if anyone in the community reading and listening to this can chime in to add their perspective? My trans and sex worker friend circles don’t actually intersect right now, I’m not sure I’d have a good sample group by polling my social groups but I do intend on bringing it up with various friends that I think would be interested in this topic when I think of it in the future. I can say I’ve seen a little bit of the trans/autism blend Carta was talking about, though. I’ve just never dissected the people I know into quite so fine detail as that, though, and so that hadn’t occurred to me. ☺️
I was previously diagnosed with fibromyalgia before arriving at my current (and hopefully final) diagnosis and am now also being evaluated (and almost certainly have) POTS, so I can relate to your experiences as well, Noor. There are so many similarities in the lived experiences for those of us with “invisible” disabilities. Not a particularly “fun” thing to discover you have in common but it can actually be exciting because when you find someone that “gets it” on that many levels (kink, health, sexuality) it really lightens the mental load and emotional labor in communication, which can make connection/friendship more manageable and enjoyable, and less taxing on for a person with limited spoons to begin with. I can’t tell you what a joy and a breath of fresh air it has been to find your Substack!
I’m about to listen and I’m not sure I’ve ever been so impatient to consume information as I am this for information! I was just diagnosed with hEDS (after the unfortunately all too common many years of misdiagnoses and ineffective treatments, etc.) and although from your introduction I can understand Carta’s diagnosis for which specific type of the Ehlers Danlos Syndromes was adjusted after recording, I already anticipate this might be incredibly representative in a way I’ve never thought possible since becoming disabled almost 7 years ago.
Thank you for sharing this!
Absolutely a joy to share Carta’s words with y’all! I am currently diagnosed with fibromyalgia and POTS, and I still relate so much to what Carta has to share around her experience. I’d be surprised if you didn’t find something that resonates for you!
If you’re interested, there’s an earlier episode with rae who lives with vEDS and talks about it as well. 🖤 And thank you so much for the comment!! My heart is so full knowing someone else is as excited as I am, haha.
I enjoyed part one very much, I look forward to part two. Carta’s mention that there is a prevalence of autism and hypermobility in the trans sex worker community is something I hadn’t heard before. I’m curious if anyone in the community reading and listening to this can chime in to add their perspective? My trans and sex worker friend circles don’t actually intersect right now, I’m not sure I’d have a good sample group by polling my social groups but I do intend on bringing it up with various friends that I think would be interested in this topic when I think of it in the future. I can say I’ve seen a little bit of the trans/autism blend Carta was talking about, though. I’ve just never dissected the people I know into quite so fine detail as that, though, and so that hadn’t occurred to me. ☺️
I was previously diagnosed with fibromyalgia before arriving at my current (and hopefully final) diagnosis and am now also being evaluated (and almost certainly have) POTS, so I can relate to your experiences as well, Noor. There are so many similarities in the lived experiences for those of us with “invisible” disabilities. Not a particularly “fun” thing to discover you have in common but it can actually be exciting because when you find someone that “gets it” on that many levels (kink, health, sexuality) it really lightens the mental load and emotional labor in communication, which can make connection/friendship more manageable and enjoyable, and less taxing on for a person with limited spoons to begin with. I can’t tell you what a joy and a breath of fresh air it has been to find your Substack!